Newborn Screening Alignment by State
Newborn screening programs vary widely by state, leading to disparate health outcomes. While some states screen for thirty diseases, other states screen for over sixty. Learn more about the diseases that are not being screened in every state and why it is vitally important that every state screen for these conditions.
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What is the RUSP?
The Recommended Uniform Screening Panel, or RUSP, is a list of disorders that the Secretary of the Department of Health and Human Services recommends for states to screen as part of their state universal newborn screening programs.
The RARE Foundation advocates for the screening of federally recommended conditions within a set time frame, in every state.
68% of babies nationwide are born in RUSP-aligned states and there is still more work to do.
Learn how many rare diseases are screened for in your state and how you can advocate for your state to follow the federal recommendations:
Find Your State
Newborn Screening Map
Recommended Uniform Screening Panel (RUSP) Alignment Legislation
Share Your Story
Raising public awareness is key to increasing support and enthusiasm for newborn screening programs. Learn how to share your newborn screening story, submit a letter to the editor, and reach out to your local media.
Take Action in Your State
Newborn screening programs vary widely by state, leading to disparate health outcomes. Learn about the progress made in ensuring babies born in every state have the same opportunity for diagnosis, current federal and state bills, and how to take action.
