The RARE Foundation offers a number of opportunities for young advocates to shine and connect throughout the year. Events like RARE Disease Week, RARE Across America, and our virtual Youth + Teen Hill Day, provide the chance for young people 10-18 years old to connect with their peers and receive specially designed training and resources before meeting with their legislators.
Before Youth + Teen Hill Day, advocates attend virtual trainings on how Congress creates laws, how to communicate with your Representatives and Senators, and how to understand key policies affecting the rare disease community, designed for youth and teens.
Unsure how to get started? Check out some of our resources specifically geared towards young advocates. If you have questions, reach out to us at advocacy@rareadvocates.org.
Advocacy Events
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RARE Disease Week
This free, multi-day event brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. #RareDC2027
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RARE Across America
Rare Across America is the opportunity to meet with your Members of Congress at their in-district offices and educate them on the issues that are most important to the rare community by sharing your story.
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RARE Youth + Teen Advocacy Days
RARE Advocates invites members of the rare disease community between 10 and 18 years old to participate in RARE Youth + Teen Advocacy Days.
Resources for Young Advocates
Training Videos and Recordings*
* These materials are password protected. If you need the password, please reach out to advocacy@rareadvocates.org.
