Latest Actions
As a rare disease advocate, you are an important part of the legislative process. You can make a difference by making your voice heard by your state and federal legislators. RARE Advocates shares action alerts on behalf of rare disease patient organizations. The action alerts on this page reflect issues of importance to the community but do not necessarily reflect an endorsement of policy positions by the RARE Foundation.
Please click on the Action Alerts below that are the most important to you and contact your legislators. After you “take action” your job is not done! The next step is to share the action alert with your family, friends, co-workers, and any other people that might be interested in taking action on behalf of the rare disease community.
Find your federal, state, and local legislators and their contact information.
Help Grow the Congressional Rare Disease Caucus
The Congressional Rare Disease Caucus is a forum for Members of Congress to voice constituent concerns, collaborate on ideas, facilitate conversations between the medical and patient community, and build support for legislation that will improve the lives of people with rare diseases.
