Newborn Screening Bootcamp

Co-hosted by the RARE Foundation and Expecting Health, Newborn Screening Bootcamp provides attendees with the opportunity to learn about and discuss developments in newborn screening with experts and patient advocates currently navigating the newborn screening process – as we also work to facilitate engagement across our ecosystems.

Panels will focus on ways advocates interact with the newborn screening system, highlighting the work of federal agencies as well as opportunities for advocates to sit on various federal and state newborn screening-related committees.

“For any rare disease patient, caregiver or passionate advocate, the Newborn Screening Bootcamp is a must. It provides a great opportunity to connect with others in the Rare Disease community and build relationships crucial to advancing expanded Newborn Screening for all.”

Allison Bones

Rare Disease Advocate

View previous Newborn Screening Bootcamp Recordings