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37
How many rare diseases Florida screens for
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3
Rare diseases missing: Krabbe, MLD, Duchenne
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6 months
How long results are stored
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$0
Required screening fees (see statute below)
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224,267
Annual births
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748
Estimated Diagnoses
Screening in Florida
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Medicaid, Newborn Screening Fund
Where are the laboratory facilities?
Bureau of Public Health Laboratories
Where can I learn more?
More about Florida’s Newborn Screening Program
Dried Blood Spot Storage Explained
While dried blood spots obtained through newborn screening are stored for only six months, records are retained for six years.
Screen Fees Explained
In Florida, insurance is billed for newborn screening tests. Program support is provided by Medicaid and newborn screening-specific funds.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
Previous Legislative Explained
In 2017 Florida passed SB 1124/HB 963, which supports state alignment with the federal RUSP within a timeframe of 18 months.
SMA was added to the state panel on February 15, 2019. Screening for Pompe, MPS I, and X-ALD begins in 2020.
