You have the power to shape a brighter future for the 30 million Americans living with a rare disease by including the RARE Foundation (formerly the EveryLife Foundation for Rare Diseases) in your will, trust, or other planned gift. Your legacy will help ensure that patients and families continue to be seen, heard, and supported, advancing science-driven policy, advocacy, and patient engagement for generations to come.
Ways to Leave a Legacy
A planned gift is more than a financial decision; it is a lasting expression of your values. Thoughtfully designed to align with your personal and philanthropic goals, your legacy can help drive progress in therapy development, expand access to care, and create enduring change for the rare disease community.
1. A Gift in Your Will or Living Trust
Including a gift to the RARE Foundation in your will or trust is one of the simplest ways to ensure our work continues. You can:
- Leave a specific dollar amount.
- Designate a percentage of your estate.
- Give what’s left after other gifts to loved ones are fulfilled.
2. Name Us as a Beneficiary
Some assets can pass directly to the RARE Foundation without going through your will. Simply name the “RARE Foundation” as a beneficiary of:
- Retirement accounts (IRA, 401(k), etc.)
- Life insurance policies
- Bank or investment accounts
3. Gifts That Provide Income Back to You
Certain giving arrangements allow you to support the rare disease community while receiving fixed or variable income for life or for a set period:
- Charitable Gift Annuity – Provides dependable, fixed payments for life.
- Charitable Remainder Trust – Pays you or your loved one’s income, with the remainder supporting the RARE Foundation’s mission.
4. Gifts of Appreciated Assets
By donating assets such as stocks, mutual funds, or real estate, you may:
- Avoid capital gains taxes.
- Receive a charitable deduction.
- Make a larger gift than you might with cash alone—all while advancing equitable access to diagnoses, treatments, and cures.
5. Endowed or Named Funds
An endowed gift invests your principal and uses only the earnings each year, ensuring your support for the rare disease community continues indefinitely. You can also create a named fund to honor a loved one and their rare disease journey.
Your Legacy, Your Way
Every planned gift, no matter the size, helps ensure we can continue to unite and amplify the rare disease community, advance meaningful policy, and drive patient centered change for decades to come. Together, we can shape a legacy that reflects your values and creates lasting impact for generations.
If you have already included the RARE Foundation in your plans, we would be honored to hear from you so we can recognize your commitment during your lifetime and help ensure your gift achieves the impact you envision.
For more information or assistance in creating your plan, please contact the RARE Foundation at philanthropy@rareadvocates.org.
All donations are fully tax-deductible by law. Tax ID # 26-4614274
