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Our Board

The RARE Foundation Board of Directors is comprised of a diverse group of individuals who are both personally and professionally dedicated to the 30 million Americans living with a rare disease.

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Amy Gaviglio at Podium

Executive Committee

Board Members

More from RARE

  • Our Team

    Group photo of RARE Foundation staff at RDW 2026 event

    Our staff is dedicated to our mission to speak up for the 30 million Americans living with a rare disease.

  • Careers

    Group photo of RARE Foundation staff at RDW 2026 event

    Our expert team has earned recognition as a trusted, nonpartisan leader in the rare disease space for more than 15 years by educating and activating patients and their families.

  • Our Story

    Since our founding in 2009, the RARE Foundation has reshaped the rare disease landscape thanks to the power of our community.