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Ways to Give

The RARE Foundation (formerly the EveryLife Foundation for Rare Diseases) is proud to ensure that every program we offer remains accessible at no cost to the rare disease community, made possible through the generosity and partnership of supporters like you.  

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Supporting the EveryLife Foundation is deeply personal to me. Like so many families, ours has been touched by rare disease, and I know how isolating that journey can feel. EveryLife is changing that bringing visibility, advocacy, and real progress to a community that has gone unseen for too long.

Mike

Monthly Donor

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  • Why Give to the RARE Foundation?

    Advocates at Rare Disease Week 2025

    Your support helps us amplify the voices of the rare disease community to drive meaningful change and influence policy.

  • Our Impact

    Beatriz Fraga displays her art at Rare Disease Week 2025

    Since our founding in 2009, we have reshaped the rare disease landscape thanks to the power of our community.

  • Issues We Advocate For

    The policy priorities and initiatives of the RARE Foundation are informed by and powered by YOU – our rare disease community – to ensure that our priorities reflect the most pressing needs of this community.