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Community Scholarships

Living with a rare disease may create financial barriers to education. The RARE Foundation provides Community Scholarships to help make education more accessible.

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Rebecca Banner

Paula Kovarick Segalman Family Scholarship for ALS

About: Established in memory of Paula Kovarick Segalman, this scholarship supports undergraduate students financially impacted by ALS. 

Eligibility:Open to U.S. residents who have experienced financial hardship due to ALS affecting themselves or an immediate family member (living or deceased). Applicants must plan to enroll full-time in an accredited two- or four-year college, university, or vocational school for the upcoming academic year.

Award: Up to $5,000, renewable.

Application Dates:Next application opens Spring 2027.

#RAREis Scholarship Fund

About:The RARE Foundation, in partnership with Amgen,  established the #RAREis Scholarship Fund in 2020 to support adults living with rare diseases pursuing their educational goals.

Eligibility: Open to U.S. residents age 17 or older with a rare disease, diagnosed or undiagnosed with verification, who plan to enroll full- or part-time in an accredited college, university, or trade school for the Fall semester.

Award: One-time $5,000 scholarships

Application Dates: 2027 Update Coming Soon.

Pursue Your Dreams through RARE Community Scholarships 

For questions about existing scholarships or creating your own, email us at programs@rareadvocates.org.