-
38
How many rare diseases New York screens for
-
2
Rare diseases missing: MPS II, Duchenne
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10 years
How long results are stored
-
$0
Required screening fees (see statute below)
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204,864
Annual births
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683
Estimated Diagnoses
Screening in New York
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
State Funds (special revenue account)
Where are the laboratory facilities?
The Wadsworth Center
Where can I learn more?
More about New York’s Newborn Screening Program
Screen Fees Explained
New York does not have a newborn screening fee associated with its program. Instead, state public health funding and the Maternal Child Health Block Grant (MCHBG) supports screening.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
