Welcome to the RARE Foundation’s RARE Diversity Hub
With over 10,000 unique, rare diseases recognized in the United States, patients often experience a long journey to receive their diagnosis. For patients who are in historically underserved communities, there are often increased barriers to accessing care and inclusion both during and after the diagnostic odyssey.
This hub provides resources and aid to empower not only yourself, but your community.
Diverse Faces of Rare Disease
What's Your Story?
Stories are a powerful advocacy tool to help people understand the challenges of the rare disease community.
