-
36
How many rare diseases Indiana screens for
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4
Rare diseases missing: MPS II, MLD, Duchenne, GAMT
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6 months
How long results are stored
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$120
Required screening fees (see statute below)
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80,153
Annual births
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267
Estimated Diagnoses
Screening in Indiana
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Funds, NBS Fund
Where are the laboratory facilities?
Indiana University NBS Laboratory
Where can I learn more?
More about Indiana’s Newborn Screening Program
Dried Blood Spot Storage Explained
If parents or guardians provide written consent for their newborn’s DBS to be available for medical research purposes, the DBS is stored for three years and then destroyed. If parents or guardians do not consent, their newborn’s DBS is stored for six months and then destroyed.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection of rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
