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38
How many rare diseases Kentucky screens for
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2
Rare diseases missing: MLD, Duchenne
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2 months
How long results are stored
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$200
Required screening fees (see statute below)
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52,846
Annual births
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176
Estimated Diagnoses
Screening in Kentucky
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Funds, Health & Family Services Fund
Where are the laboratory facilities?
Molecular & Clinical Chemistry, KY Department of Health
Where can I learn more?
More about Kentucky’s Newborn Screening Program
Dried Blood Spot Storage Explained
Most dried blood spots obtained through newborn screening are stored for two years. Abnormal results are stored for longer periods, to be used for studies that contribute to rare genetic disease and newborn screening research.
Screen Fees Explained
Newborn screening fees cover the costs associated with the newborn screening program.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection of rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
