-
37
How many rare diseases Kansas screens for
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3
Rare diseases missing: MLD, Duchenne, GAMT
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1 month
How long results are stored
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$0
Required screening fees (see statute below)
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33,972
Annual births
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113
Estimated Diagnoses
Screening in Kansas
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Funds, NBS Fund
Where are the laboratory facilities?
KS Health & Environmental Laboratories
Where can I learn more?
More about Kansas’s Newborn Screening Program
Dried Blood Spot Storage Explained
Though dried blood spots obtained through newborn screening are typically stored for only one month in Kansas, abnormal results are stored for longer periods to be used for research, with parental consent.
Screen Fees Explained
Newborn screening is supported by the Medical Assistance Fund, which is subject to appropriations.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection of rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
