The RARE Foundation is committed to safeguarding the privacy of its users. Information gathered by us is used to monitor the effectiveness of our site, personalize your internet experience, and respond to your questions and requests. The RARE Foundation respects the privacy of every individual who uses the website and mobile applications (collectively, the “Site”). This notice applies to our information collection practices for this Site. Because your privacy is important to us, we provide you with notice and choices about the collection and use of your information. To make this notice easy to find, links are provided at the bottom of our homepage and on every page within the RARE Foundation website.
Additionally, each page that requests personally identifiable information reminds you of the importance of your privacy and provides a link to the privacy policy. By using our Site, you accept the practices described in our Privacy Policy.
Use of Cookies
We use cookies to enhance your browsing experience, serve personalized ads or content, and analyze our traffic. By clicking “Accept All,” you consent to our use of cookies.
Data Collection
We have created this statement to demonstrate our firm commitment to your privacy. We do not collect personally identifying information about you when you visit our Site unless you choose to provide such information to us. Providing such information is strictly voluntary. This policy is your guide to how we will handle information we learn about you from your visit to our website. Any information collected will not be sold or rented to third parties.
Reading or Downloading
We collect and store only the following information about you: the name of the domain from which you access the internet, the date and time you access our site, and the internet address of the website from which you linked to our Site. We use the information we collect to measure the number of visitors to the different sections of our Site and to help us make our site more useful to visitors.
Contributions
If you choose to donate to our organization, we maintain a record of your contribution. We may use your contact information to send further information about our organization or to contact you when necessary. You may always opt out of receiving future mailings; see the “Your Options” section below.
Internal Use
You also may decide to send us personally identifying information, for example, in an electronic mail message containing a question or comment, or by filling out a web form that provides us with this information. We use personally identifying information from email to respond to your requests. We may forward your email to other employees who are better able to answer your questions. We may also use your email to contact you in the future about our programs that may be of interest. We will not obtain personally identifying information about you when you visit our website unless you choose to provide such information to us. Providing such information is strictly voluntary.
Except as might be required by law, we do not share any information we receive with any outside parties. If you sign up for one of our email lists, we will only send you the kinds of information you have requested. We will not share your name or email address with any outside parties.
Your Options
Our site provides users the opportunity to opt-in to receive communications by signing up for one of our events or our newsletters. You may opt out of receiving communications from us by unsubscribing at the bottom of our communications. You may also update your contact information previously provided to us by emailing info@rareadvocates.org. You cannot remove yourself from our database, but you can prevent unwanted communication.
Security and Privacy Requests
We respect your privacy and allow you to restrict internal and external sharing of your personal information. We recognize that you may wish to limit the ways in which we contact you and we offer the following options:
The RARE Foundation
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To protect your privacy and security, we will take reasonable steps to verify your identity before providing information or making corrections.
Data Security
The security of your personal information is very important to the RARE Foundation and we are committed to protecting the information we collect. Only Foundation staff, contracted consultants, and vendors have access to this data based upon minimum necessary access. We conduct annual cyber security compliance audits to ensure that all data is protected to the highest extent possible. Ongoing data security training is conducted for all staff, and our information technology infrastructure has been designed with the highest-grade firewalls as another layer of protection for donor information.
We have implemented and maintain appropriate technical and organizational security measures, policies, and procedures designed to reduce the risk of accidental destruction or loss, or unauthorized disclosure or access to such information appropriate to the nature of the information, concerned, including, where appropriate, password protection, encryption, tokenization, and secure socket layering to protect our donation and other forms; and following strict security procedures in the storage and disclosure of your personal information to prevent unauthorized access to it.
Data is used for communication and solicitation processes. We may use third-party partners to collect data for the Foundation to process donations and event registrations. These partners are required to adhere to the Foundation’s data use, security policies, and applicable compliance requirements.
External Links
Our privacy policies apply only to your use of the RARE Foundation website. The Site contains links to other sites, including sites that have a special relationship with us. We do not disclose personably identifiable information to those operating linked sites, and we are not responsible for their privacy practices. Links to other sites do not imply an endorsement of the materials or policies on those websites. You should read the privacy policies of each site you visit to determine what information that site may be collecting about you.
This privacy statement will be updated periodically and posted on our Site. It applies only to our online practices and does not encompass other areas of the organization. We reserve the right to change this policy at any time by posting revisions. By accessing or using the Site, you agree to be bound by all the terms and conditions of the RARE Foundation online and mobile application privacy policy as posted at the time of your access or use.
If you have any questions about this privacy statement, the practices of this site, or your dealings with this website, you can contact us at info@rareadvocates.org.
