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Careers

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Group photo of RARE Foundation staff at RDW 2026 event

The RARE Foundation is a dynamic national nonprofit dedicated to accelerating the development of life-changing treatments for the estimated 30 million Americans living with rare diseases. Our expert team has earned recognition as a trusted, nonpartisan leader in the rare disease space for more than 16 years by educating and activating patients and their families to ensure they are heard by policy makers in government and the healthcare industry.

At the RARE Foundation, we care about one another, our work, and the rare disease community we serve. And we are committed to a shared workplace that prioritizes employee health and wellbeing.

Open Roles

There are no positions available at this time, but please return to this page periodically or visit our LinkedIn profile for the latest job postings.

Comprehensive Benefits Package

  • Rewarding Opportunity

    Valuable mission-based work with a team of dedicated professionals.

  • Health Coverage

    We pay 100% of health premiums for employees and 60% of premiums for their families.

  • Vision and Dental Coverage

    We pay 100% of vision and dental premiums for employees and their families.

  • Flexible Savings Account

    Employer contributions to Medical FSA, as well as Dependent Care FSA options.

  • Wellness Reimbursement

    Reimbursement for wellness-related expenses that may not be covered by FSA.

  • Retirement Planning

    A 401K with up to 6% match of your annual salary.

  • Time Off

    Three weeks’ vacation, sick leave, holidays, and two office-wide shutdown weeks.

  • Paid Parental Leave

    Two months’ paid leave for recovery and bonding for all new parents.

  • Learning & Professional Development

    Access to meaningful learning and training opportunities that fit your interests and career goals.

  • Monthly phone and internet stipend

    $100 per month for personal phone and internet use

  • Remote and Hybrid Work Schedule

    Hybrid and fully remote positions are available, depending on the role.

For more information about any of the positions listed or about career opportunities at the RARE Foundation, email us at careers@rareadvocates.org

More from RARE Foundation

  • About RARE Foundation

    Legislative Conference attendees

    The RARE Foundation is a nonprofit, nonpartisan organization powered by the rare disease community to improve health outcomes by driving change through evidence-based policy.

  • Our Team

    Group photo of RARE Foundation staff at RDW 2026 event

    Our staff is dedicated to our mission to speak up for the 30 million Americans living with a rare disease.

  • Issues We Advocate For

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    The policy priorities and initiatives of the RARE Foundation are informed by and powered by YOU – our rare disease community – to ensure that our priorities reflect the most pressing needs of this community.