Recommended Uniform Screening Panel (RUSP) Alignment Legislation 

The RARE Foundation has led state-level efforts to ensure that babies born in every state have the same opportunity for timely diagnosis and treatment. These laws, referred to as RUSP alignment legislation, require the states to screen newborn babies for any disorder on the federal Recommended Uniform Screening Panel (or RUSP), implement a timeline in which the screening must begin, and ensure that resources will be available to fund all conditions added to the RUSP in the future.  

Thirteen states have adopted RUSP alignment legislation, including:

• California in 2016;
• Florida in 2017; 
• Arizona, Georgia, North Carolina, and Ohio in 2021; 
• Iowa, Pennsylvania, Mississippi, and Maryland in 2022; 
• Texas in 2023;
• Tennessee in 2024; and 
• Virginia in 2025.

This life-saving momentum has been a result of a growing effort by advocates urging states to keep pace with science.

As a community, we will never stop fighting for newborn screening policies that enable every baby in America to receive a diagnosis and access to lifesaving treatments at the earliest possible moment.