-
37
How many rare diseases Utah screens for
-
3
Rare diseases missing: Krabbe, MLD, Duchenne
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3 months
How long results are stored
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$148
Required screening fees (see statute below)
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46,655
Annual births
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156
Estimated Diagnoses
Screening in Utah
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Fees, NBS Fund
Where are the laboratory facilities?
UT Public Health Laboratory
Where can I learn more?
More about Utah’s Newborn Screening Program
Dried Blood Spot Storage Explained
All dried blood spots obtained through the Utah newborn screening program are stored for a minimum of 3 months. Records are retained for 22 years. Consent for retention of sample is required with parent signature to either destroy the sample at 90 days, or allow storage for 7 years.
Screen Fees Explained
Newborn screening fees covers the costs of testing, laboratory analysis, and administrative costs. Any follow-up screening fees are covered.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
