The RARE Foundation Create Your Own Impact Fundraising Program brings together individuals, families, and communities to take action in meaningful ways.
Whether you are running a marathon, hosting a fundraiser, celebrating a milestone, or honoring a loved one, you can create an experience that reflects your story while making a real impact.
You bring the passion. We provide the tools, structure, and support.
Through endurance events and community-driven fundraising, you help:
Advance research and therapy development
Shape policy and advocacy efforts
Strengthen the rare disease ecosystem
Ensure programs remain accessible at no cost to those who need them most
Endurance Program
Join a growing movement of individuals taking on physical challenges in support of the rare disease community.
From major races to personal goals, every mile becomes a platform for awareness and impact.
Ways to Participate
- Run a half or full marathon as part of Team RARE.
- Join a virtual endurance challenge on your own schedule.
- Set a personal fitness goal and fundraise alongside it.
- Participate in upcoming or partner races across the country.
Individuals participate not just for miles, but for millions.
Create Your Own Campaign
Not running a race? You can still create impact in a way that is personal and meaningful to you.
A DIY campaign allows you to turn your story, network, and community into a force for change.
What is a DIY Campaign?
A DIY campaign gives you the flexibility to support the rare disease community in your own way.
- Fundraise for a cause you care about.
- Honor someone important in your life.
- Bring people together around a shared purpose. ‘
How It Works
1. Create Your Page
Set up your personalized fundraising page in just a few minutes
Email: philanthropy@rareadvocates.org (Subject: DIY Campaign)
2. Share Your Story
Tell people why this matters to you and what you hope to achieve
3. Invite Others to Join
Engage friends, family, and your broader network
4. Make an Impact
Every action helps advance meaningful change for the rare disease community
Tools and Resources
We are here to support you every step of the way. Once you get started, you will receive access to curated tools and personalized support.
Available Resources Include:
- Facebook fundraising guides
- High school fundraising guides
- College fundraising guides
- Virtual run and endurance fundraising resources
- Sample outreach messages and templates
- Social media guidance and campaign ideas
- Ongoing support from our team
Every Campaign and Every Mile Contributes to:
Advancing policy and advocacy efforts
Supporting individuals and families navigating rare diseases
Expanding access to diagnoses, treatments, and care
Building a stronger, more connected rare disease community
Ready to Get Started?
Create something meaningful.
Share your story.
Make an impact.
We’re Here to Help
Have a question or want to talk through your idea?
Reach out anytime at philanthropy@rareadvocates.org
Our team is happy to support you.
UPCOMING EVENT:
2026 TCS New York City Marathon
Beginning in Staten Island and finishing in Central Park, the course spans Brooklyn, Queens, the Bronx, and Manhattan—bringing together communities from across the city in one of the world’s most recognized endurance events.
Frequently Asked Questions
Do I need fundraising experience?
Not at all. We provide everything you need to get started.
Is there a minimum fundraising goal?
No. Every effort makes a difference.
Can I do this with a group?
Absolutely. Many campaigns are led by families, teams, or communities.
How will I be supported?
Our team provides guidance, tools, and ongoing support throughout your campaign.
Start Your Campaign Today.
Your story has the power to create change.
