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38
How many rare diseases Minnesota screens for
-
2
Rare diseases missing: MLD, MPS II
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Indefinite
How long results are stored
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$242.35
Required screening fees (see statute below)
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62,009
Annual births
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207
Estimated Diagnoses
Screening in Minnesota
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Funds, NBS Fund
Where are the laboratory facilities?
Minnesota Laboratory
Where can I learn more?
More about Minnesota’s Newborn Screening Program
Dried Blood Spot Storage Explained
In 2006, section 13.386 of Minnesota statutes authorized use of genetic material for specified purposes, with informed consent. In 2011, the Minnesota Supreme Court dealt with privacy legislation in Bearder v. State of Minnesota. The court ruled that though genetic privacy law extends to dried blood spots, exceptions allow for newborn screening, dried blood spot storage, recording, and reporting of results. In 2014, state law began to allow for use of dried blood spots and tests results in studies needed to improve newborn screening and develop better testing mechanisms. Parents, or, at eighteen years of age the person who has been tested, may request destruction of their dried blood spots.
Screen Fees Explained
Newborn screening fees cover expenses of the newborn screening program, including tests administered. If a repeat screen is needed, fee is charged twice.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection of rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
