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Newborn Screening in North Dakota

See how North Dakota's newborn screening program compares to federal recommendations.

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  • 37

    How many rare diseases North Dakota screens for

  • 3

    Rare diseases missing: MLD, Duchenne, GAMT

  • 18 years

    How long results are stored

  • $122

    Required screening fees (see statute below)

  • 9,627

    Annual births

  • 34

    Estimated Diagnoses

Screening in North Dakota

Does the state have a NBS Advisory Council?
Yes

How is screening funded?
Screen Fees, Hospital Facilities, MCHBG

Where are the laboratory facilities?
Iowa State Hygienic Laboratory

Where can I learn more?
More about North Dakota’s Newborn Screening Program

Take Action in North Dakota

Dried Blood Spot Storage Explained

Materials obtained for newborn screening may be stored for 18 years, and de-identified data may be used for research with parental permission.

Screen Fees Explained

The newborn screening fees covers all necessary costs associated with the program.

Statutes & Regulations

Statutes & Regulations Explained

Statutes and regulations are the collection rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.

Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.

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