Advocacy 101 Resources
-
Organizational Policy Priorities for the 119th Congress in 2026 (Webinar)
This webinar brings together leaders across the rare disease ecosystem to share key policy priorities shaping 2026.
-
How to Attend a Congressional Town Hall Meeting
Take part in meetings to build a relationship with your Member of Congress and their staff and raise the profile of the rare disease community to policymakers.
-
Why Advocacy Matters: Underserved Community Barriers and Challenges
To address health disparities and change the system, health and government officials need to hear your voice.
-
Scheduling a Meeting with Your Legislator
The most effective interaction you can have with your legislator is a face-to-face meeting.
-
How to Foster a Relationship with Your Member of Congress
Members of Congress are more likely to support a policy proposal when they hear directly from people who live in their district.
-
Youth and Teen Social Story on Meeting with a Legislator
This social story helps prepare children and families for meeting with a legislator by walking through what to expect.
The U.S. Legislative Process
How does a bill become a law? This infographic will walk you through the process so that you can better understand how the Legislative Branch of our government works ahead of your next Hill meeting.
Latest Updates
Meet the RARE Advocates Advisory Committee
The RARE Advocates Advisory Committee is comprised of rare disease advocates committed to ensuring that everyone in the rare disease community has a voice and can make an impact on legislation and policy. The committee includes 18 community members and the RARE Foundation’s Vice President of Advocacy.
Reach out for information about joining the committee
More than 30 million Americans are living with one or more rare diseases. Each one of us has a story. We want to hear yours.
Events
See All Events
Sponsors
