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Find Your Legislators

Engaging with your legislators ensures that the needs and priorities of the rare disease community are heard and considered in the policymaking process. Start building relationships with your legislators today!

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RARE Young Adults 2025

Find the federal, state, and local legislators that represent you, as well as their contact information so that you can reach out directly.

Legislative Scorecards

RARE Advocates provides a Legislative Scorecard for advocates to use when communicating and meeting with their Members of Congress. The Legislative Scorecard “scores” legislators on some of the actions that they took for the rare disease community in the current Congress.

Track Your Legislator’s Campaign Donations

Discover who your legislators are receiving donations through Open Secrets, a research group tracking money in U.S. politics and its effect on elections and public policy.

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Help us amplify the voices of the rare disease community to drive meaningful change and influence policy.