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Newborn Screening in Alaska

See how Alaska's newborn screening program compares to federal recommendations.

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  • 32

    How many rare diseases Alaska screens for

  • 8

    Rare diseases missing: MPS I, Pompe, X-ALD, MPS II, GAMT, Krabbe, Duchenne, MLD

  • 3 years

    How long results are stored

  • $190.50

    Required screening fees (see statute below)

  • 8,928

    Annual births

  • 30

    Estimated Diagnoses

Screening in Alaska

Does the state have an Advisory Council?
Yes

How is screening funded?
Screen Fees, Hospital Facilities

Where are the laboratory facilities?
University of Iowa Hygienic Laboratory

Where can I learn more?
More about Alaska’s Newborn Screening Program

Statutes & Regulations

Screen Fees Explained

In Alaska, the newborn screening fee is paid on a per infant basis to cover the costs of the newborn screening program.

Statutes & Regulations Explained

Statutes and regulations are the collection rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.

Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.