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37
How many rare diseases Missouri screens for
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3
Rare diseases missing: MLD, Duchenne, GAMT
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5 years (unless parent opts out of storage)
How long results are stored
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$130
Required screening fees
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67,925
Annual births
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226
Estimated Diagnoses
Screening in Missouri
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Fees, Federal Funds, Missouri Public Health Services Fund
Where are the laboratory facilities?
Missouri State Public Library
Where can I learn more?
More about Missouri’s Newborn Screening Program
Screen Fees Explained
The fee covers newborn screening laboratory tests only. The program provides a formula for the treatment of inherited diseases of amino acids and organic acids, based on income eligibility.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
