-
37
How many rare diseases Iowa screens for
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3
Rare diseases missing: MLD, Duchenne, GAMT
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5 years
How long results are stored
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$192
Required screening fees (see statute below)
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36,391
Annual births
-
121
Estimated Diagnoses
Screening in Iowa
Does the state have a NBS Advisory Council?
Yes
How is screening funded?
Screen Funds, NBS Fund
Where are the laboratory facilities?
University of Iowa Hygienic Laboratory
Where can I learn more?
More about Iowa’s Newborn Screening Program
Screen Fees Explained
Newborn screening fees cover the costs of collecting specimen, laboratory analysis, follow-up services, and all other costs associated with the newborn screening program.
Statutes & Regulations
Statutes & Regulations Explained
Statutes and regulations are the collection of rules that govern all newborn screening program components. This includes diseases found on the state screening panel, reporting of test results, newborn screening program guidelines, state committee guidelines, and fees. Statutes and regulations are both enforced under full authority of the law.
Statutes are laws enacted by the state legislative body and signed into law by the governor. They are broadly enforced across the entire state. Regulations are created by state agencies, under authority from statute, to oversee the specific area of the state. For example, a statute will authorize the ability to create a newborn screening fee and the regulation will determine the amount of the fee.
