This social story helps prepare children and families for meeting with a legislator by walking through what to expect and how to share their story with confidence. It reinforces that every voice matters and that personal experiences can help drive meaningful change for the rare disease community.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
