This webinar brings together leaders across the rare disease ecosystem to share key policy priorities shaping 2026—from protecting access to care and advancing research funding to supporting caregivers and accelerating innovation. Grounded in the patient experience, the conversation highlights the power of advocacy and collaboration to drive meaningful, system-level change for the rare disease community.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
