Get information on policy priorities impacting the LGBTQIA+ rare disease community, upcoming community input sessions, and current news.
Our Vision
The RARE Foundation is committed to providing resources and aid to support not only individual advocates, but our patient advocacy group community as well. As part of our vision towards achieving this, we will:
- engage with the community through a variety of forums to shape policy priorities; and
- support advocates and stakeholders to drive policy change for the rare LGBTQIA+ community.
“The LGBTQIA+ rare disease advocate community is a powerful and supportive group that has made me more confident in my identity, which has improved my advocacy skills. It’s exciting to have a dedicated program to have another resource to not only strengthen the community but hopefully create more positive change for this community.”
Kennedy Sullivan (she/they)
