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Get Involved with RARE Pride

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Watch the ‘RARE Pride’ Kickoff Webinar

Share your story

We invite you to share your experience as a member of the LGBTQIA+ rare disease community. Empower yourself and others today!  

Attend events

Attend our community events such as regular virtual meetings, open community meetings, and more to gain advocacy experience at the intersection of your identities and participate in interactive spaces.  Join the RARE Pride email list to learn more about these events. 

Stay Connected 

Sign up for updates from RARE Pride.   

Talk about us

Promote community events, surveys, toolkits, and other resources to your personal network that are produced through RARE Pride throughout the year.

Contact us

If you have questions, please email us at programs@rareadvocates.org and someone from the RARE Pride team will contact you.