Rare Disease Advocacy in North Dakota
Rare disease advocacy in North Dakota is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across North Dakota.
Jump to:
State Organization
Currently this state does not have a state organization.
For more information, please reach out at advocacy@rareadvocates.org.
U.S. Congress Scorecard
See how North Dakota’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
An Advisory Council has not been established yet.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
Newborn Screening in North Dakota
Newborn screening programs vary widely by state, leading to disparate health outcomes. While some states screen for thirty diseases, other states screen for over sixty.
North Dakota Advocacy Resources
Insurance Commissioner
- Jon Godfread
insurance@nd.gov
Department of Insurance
Board of Pharmacy Executive Director
- Mark Hardy
mhardy@nboard.pharmacy
Health and Human Services
- Medicaid in North Dakota
- Contact: Sarah Aker
701-328-2310
Department of State Health Services
COVID-19 Resources
State Legislature Calendar
State Legislature Website
Drug Utilization Board or P&T Committee
- DUR Board Website
- Meeting Schedule: Meets quarterly (check website for schedule of meetings).
- Contact: Brendan Joyce, bjoyce@nd.gov
- Established DUR Boards and P&T Committees
