We struggled for 18 months to get a proper diagnosis. Thankfully, babies are now routinely screened for CF in all 50 states.
My son Gunnar was born with cystic fibrosis in 1991. Back then in Kentucky, where we lived at the time, they didn’t screen for CF. We struggled for 18 months to get a proper diagnosis. Thankfully, babies are now routinely screened for CF in all 50 states. That’s why the Newborn Screening Saves Lives Act of 2019 is so important – to ensure that babies have access to the same high-quality screening no matter their zip code.
