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Gavin’s Story

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Gavin was diagnosed too late and his disease had progressed too far. When MLD has a newborn screening, those lives will be saved.

Shanna and Gavin

If my son Gavin was diagnosed with MLD at birth he would have received treatment earlier. With early treatment he would still be alive today. He was diagnosed too late and his disease had progressed too far… when MLD has a newborn screening… those lives will be saved.