Rare Disease Advocacy in Arizona
Rare disease advocacy in Arizona is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across Arizona.
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State Organization
Currently this state does not have a state organization. For more information, please reach out at advocacy@rareadvocates.org.
U.S. Congress Scorecard
See how Arizona’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
Arizona established its Rare Disease Advisory Council in 2025.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
Newborn Screening in Arizona
Newborn screening programs vary widely by state, leading to disparate health outcomes. While some states screen for thirty diseases, other states screen for over sixty.
RARE Young Adults
RARE Young Adults brings together motivated members of the rare disease community, ages 16–30, to build confidence, strengthen advocacy skills, and create meaningful impact in public policy.
Arizona Advocacy Resources
Insurance Commissioner
- Charles Bassett
Contact: Lori Dreaver Munn – Deputy Director of Insurance
lori.munn@difi.az.gov
Department of Insurance
Board of Pharmacy Executive Director
- Kam Gandhi
KGandhi@azpharmacy.gov
Health and Human Services
Department of State Health Services
- https://www.azahcccs.gov/
Kristen Challacombe
carmen.heredia@azahcccs.gov
State Legislature Calendar
- State Legislature in Session – Click here
- Which Dates is Your State Legislature in Session – Click Here
State Legislature Website
Drug Utilization Board or P&T Committee
- Need further help contacting a state decision maker? Please reach out at advocacy@rareadvocates.org
