California
Date Created: 2017
News: https://www.calrare.org/rare-disease-caucus
Chairs:
Asm. Rick Chavez Zbur (Chair)
Sen. Catherine Blakespear (Co-Vice Chair)
Asm. Diane Dixon (Co-Vice Chair)
Point of Contact:
Angela Ramirez Holmes
Founder & President of California Action Link for Rare Diseases (CalRare)
angela@calrare.org
Pennsylvania
Date Created: 2019
News: https://pardac.org/lawmakers-chosen-as-co-chairs-for-pennsylvania-rare-disease-caucus-2/
Chairs:
Sen. Judy Ward (R-30), Co-Chair, PA Rare Disease Caucus
Sen. Maria Collett (D-12), Co-Chair, PA Rare Disease Advisory Council
Point of Contact:
Marie Conley
Chair of Pennsylvania Rare Disease Advisory Council
Founder of The Cushing Disease Fund
marie.conley@live.com
Don’t see your state? Please contact advocacy@rareadvocates.org with any questions.
