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Rare Disease Advocacy in American Samoa

Rare disease advocacy in American Samoa is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across American Samoa.

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State Organization

There is currently no state organization.

U.S. Congress Scorecard

See how American Samoa’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.

RARE Disease Advisory Council

An Advisory Council has not been established yet.

See more information on established rare disease advisory councils.

Rare Disease Caucus

Current Bipartisan Rare Disease State Legislative Caucuses.

Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.

American Samoa Advocacy Resources

Insurance Commissioner

Department of Public Health

State Medicaid

State Legislature Calendar

State Legislature Website