This congressional letter highlights support for reauthorizing the Rare Pediatric Disease Priority Review Voucher Program through the Creating Hope Reauthorization Act of 2024. The document outlines why continuing the program is critical for encouraging investment in treatments for children living with rare diseases.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
