Valuing Rare Disease Treatments in Healthcare: Real Experience, Real Impact February 07, 2024 Share this page The EveryLife Foundation and The Innovation and Value Initiative (IVI)’s project aims to advance the field of patient-centered outcomes research for rare diseases. Value Assessment Related Articles FDA Rare Disease Roundtable – June 3, 2026 June 04, 2026 EveryLife Foundation Urges CDC to Adopt Streamlined, Patient‑Centered Process for ICD‑10 Codes for Rare and Genetic Diseases May 18, 2026 The President’s Budget Proposal: What Does It Mean for our Rare Disease Community? April 06, 2026 See All News