Guide to Patient Involvement in Rare Disease Therapy Development January 25, 2022 Share this page A resource for all stakeholders to utilize as we work to optimize our rare disease product development efforts. Patient-Focused Drug Development (PFDD) Related Articles EveryLife Foundation for Rare Diseases is now the RARE Foundation September 08, 2026 More than 500 Advocates Participated in RARE Across America 2026 August 31, 2026 Breaking News: The FDA has released the draft goals letter for PDUFA VIII August 13, 2026 See All News