The EveryLife Foundation for Rare Diseases is proud to co-lead a coalition of 192 patient advocacy organizations in calling on Congress to pass the Give Kids a Chance Act of 2025 (H.R. 1262/S. 932). Together, we are urging lawmakers to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) program, a proven, no-cost incentive that drives the development of lifesaving therapies for children living with rare diseases.
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