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2026 Newborn Screening Bootcamp

Newborn Screening Bootcamp provides attendees with the opportunity to learn about and discuss developments in newborn screening.

Washington, DC

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Join us for the 2026 Newborn Screening Bootcamp

September 24, 10 AM 4 PM ET

Co-hosted by the RARE Foundation and Expecting Health, Newborn Screening Bootcamp provides attendees with the opportunity to learn about and discuss developments in newborn screening with experts and patient advocates currently navigating the newborn screening process – as we also work to facilitate engagement across our ecosystems.

Panels will focus on ways advocates interact with the newborn screening system, highlighting the work of federal agencies as well as opportunities for advocates to sit on various federal and state newborn screening-related committees.

See past Bootcamps

Thank you to our 2026 Newborn Screening Bootcamp Sponsors

Governor

Lieutenant Governor

State Representatives

Assembly Member

With Additional Support From

Upcoming RARE Events

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