EveryLife Applauds Cures 2.0 Introduction

Today, Reps. Upton and DeGette introduced their much anticipated Cures 2.0 legislation.

“We are grateful to Reps. Upton and DeGette for their continued and unwavering commitment to the rare disease community. Cures 2.0 reflects the urgency and opportunity of the rare disease community to build on the momentum and successes of the 21^st Century Cures Act. The policies in Cures 2.0 will continue to improve lives and outcomes by shortening the diagnostic odyssey, expanding scientific and data innovation, enhancing regulatory infrastructure, ensuring that patient experience informs decision making, and creating pathways to equitable access to novel treatments.” – Julia Jenkins, EveryLife Foundation for Rare Diseases Executive Director

Read the section by section summary and the bill.

Read the EveryLife Foundation’s previous comments on the Cures 2.0 discussion draft.