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Rare Disease Congressional Caucus Briefing

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Shot of the audience during the Congressional Caucus Briefing

Data to Discovery: Modernizing Healthcare Data and Clinical Trials to Accelerate Rare Disease Diagnosis and Treatments

Confirmed Speakers:

  • Nikita (Varman) Auster, Office of Congressman Jake Auchincloss,
    MA-04
  • Davis Michols, Office of H. Morgan Griffith, VA-09
  • Klaus Romero MD MS FCP, Critical Path Institute
  • More speakers to be announced soon

Upcoming RARE Events

  • September RARE Advocates Webinar

    Online
  • New England State Advocacy Day

    In Person
  • How to Get Involved with RARE Foundation: Virtual Session

    Online