New England Rare Disease Advocacy Day is a day of action for New England residents impacted by rare disease to join together and meet with their state legislators, share their stories, and advance the priorities of the rare disease community.
New Name, Same Commitment to Rare Diseases
The EveryLife Foundation for Rare Diseases has become The RARE Foundation! Read more about our new brand and how it unifies our advocacy work on behalf of the rare disease community.
