The RARE Foundation (formerly known as EveryLife Foundation for Rare Diseases) recognizes and embraces the benefits of a diverse Board and sees diversity and inclusion as essential elements to fulfill its mission to serve the diverse makeup of people affected by rare diseases. A truly diverse Board will include and make good use of differences in the skills, experience, background, race, gender, age, physical ability and other distinctions between Directors.
The Foundation reaffirms its commitment to reflecting the diversity of American society in its Board of Directors, staff and programs. In particular, the Foundation will work to ensure that its workplace has an inclusive environment that leverages the benefits of the differences of its workers and presents equal opportunities to all applicants and employees. The RARE Foundation will work diligently to see that cultural differences are not seen as obstacles to participation in its programs and activities but as essential strengths of the American experience to be shared and celebrated. Program participants and employees will be valued and respected regardless of race, gender, religion, color, national origin, disability, sexual orientation, age, education or geographic origin.
Governance
- Officer, Director, and Key Employee Conflict of Interest Policy
- Board Meeting Confidentiality Policy
- Bylaws
- Diversity Policy
- Fundraising Disclosure Statement
- Funding Policy
- IRS Determination Letter
- Whistleblower Policy
