The EveryLife Foundation Submits Comments to Advisory Committee for Heritable Disorders in Newborns and Children Following February Meeting February 14, 2023 Share this page Comments related to the evidence review of Krabbe disease for consideration to the Recommended Uniform Screening Panel (RUSP) Newborn Screening Related Articles The EveryLife Foundation Submits Comments to Support Patient-Focused Drug Development and Medical Innovation July 01, 2026 The EveryLife Foundation Submitted Comments on the Plausible Mechanism Framework April 29, 2026 HHS Adds Duchenne Muscular Dystrophy and MLD to the Federal Recommended Uniform Screening Panel (RUSP) December 16, 2025 See All News