Rare Disease Advocacy in U.S. Virgin Islands
Rare disease advocacy in U.S. Virgin Islands is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across U.S. Virgin Islands.
Jump to:
State Organization
Currently there is no state organization.
For more information, please reach out at advocacy@rareadvocates.org.
U.S. Congress Scorecard
See how U.S. Virgin Islands’ Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
An Advisory Council has not been established yet.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
U.S. Virgin Islands Advocacy Resources
Insurance Commissioner
- Tregenza A. Roach
Department of Insurance
Health and Human Services
- Medicaid in U.S. Virgin Islands
- Contact: Gary Smith
Gary.Smith@dhs.vi.go
Department of State Health Services
State Legislature Calendar
State Legislature Website
