Rare Disease Advocacy in South Dakota
Rare disease advocacy in South Dakota is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across South Dakota.
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State Organization
Currently this state does not have a state organization.
For more information, please reach out at advocacy@rareadvocates.org.
U.S. Congress Scorecard
See how South Dakota’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
An Advisory Council has not been established yet.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
Newborn Screening in South Dakota
Newborn screening programs vary widely by state, leading to disparate health outcomes. While some states screen for thirty diseases, other states screen for over sixty.
South Dakota Advocacy Resources
Insurance Commissioner
- Larry Deiter
larry.deiter@state.sd.us
Department of Insurance
Board of Pharmacy Executive Director
- Tyler Laetsch
tyler.laetsch@state.sd.us
Health and Human Services
- Medicaid in South Dakota
- Contact: Heather Petermann
DSSInfo@state.sd.us
Department of State Health Services
COVID-19 Resources
State Legislature Calendar
State Legislature Website
Drug Utilization Board or P&T Committee
- P&T Committee Website
- Meeting Schedule: Meets quarterly (check website for schedule of meetings).
- Contact: bandc@state.sd.us
- Established DUR Boards and P&T Committees
