Rare Disease Advocacy in Nevada
Rare disease advocacy in Nevada is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across Nevada.
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State Organization
Currently this state does not have a state organization.
For more information, please reach out at advocacy@rareadvocates.org.
U.S. Congress Scorecard
See how Nevada’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
An Advisory Council was established in 2019.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
Newborn Screening in Nevada
Newborn screening programs vary widely by state, leading to disparate health outcomes. While some states screen for thirty diseases, other states screen for over sixty.
Nevada Advocacy Resources
Insurance Commissioner
- Ned Gaines
ngaines@doi.nv.gov
Department of Insurance
Board of Pharmacy Executive Director
- Dave Wuest
pharmacy@pharmacy.nv.gov
Health and Human Services
- Medicaid in Nevada
- Contact: Ann Jensen, 702-668-4200
Department of State Health Services
COVID-19 Resources
State Legislature Calendar
State Legislature Website
Drug Utilization Board or P&T Committee
- DUR Board Website
- Meeting Schedule: Meets quarterly (check website for schedule of meetings).
- Contact: rxinfo@dhcfp.nv.gov
- Established DUR Boards and P&T Committees
