Rare Disease Advocacy in Guam
Rare disease advocacy in Guam is critical to improving access to diagnostics, treatment, and coordinated care. Because key healthcare decisions are made at the state level, strong local advocacy helps ensure better coverage, resources, and outcomes for the rare disease community across Guam.
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State Organization
Currently this state does not have a state rare organization.
For more information, please reach out at advocacy@rareadvocates.org.
U.S. Congress Scorecard
See how Guam’s Members of Congress are supporting the rare disease community with this Legislative Scorecard.
RARE Disease Advisory Council
An Advisory Council has not been established yet.
See more information on established rare disease advisory councils.
Rare Disease Caucus
Current Bipartisan Rare Disease State Legislative Caucuses.
Don’t see your state? If you would like to be part of the process to start a rare disease state caucus, please reach out at advocacy@rareadvocates.org.
Guam Advocacy Resources
State Legislature Website
